Know…Listen…Act!

By Marianna Boyce

It’s never a good time for a life-altering illness, so when I read Janet Prince’s blog post, “The Whispering Signs of Ovarian Cancer – Do You Know Them,” it made me sit up and take note!  At the time, I was experiencing many of the very symptoms she had mentioned in her post.

stethoscopeSince my annual checkup was just a few weeks ago, I discussed the matter with my gynecologist.  He shared my concern and ordered an ultrasound of my ovaries on that very day.  I am happy to report that it revealed no signs of ovarian cancer.  Although he thinks I’m a few years away yet, my 50-year-old body is merely preparing for the inevitable.  M-M-M-Menopause!  Yay me, but in all seriousness, the peace of mind I had leaving his office that day was truly awesome.  (Thank you, Janet.)

I’ve barely gotten used to dealing with daily chronic joint pain over the last two years.  Of course, with the right medication the pain is better, but I haven’t had a completely pain free day since June 15, 2016.  I was actually healthy and fit when my unfortunate situation reared its ugly head.  The onset of my symptoms could’ve broken a world record how quickly they spread throughout my body.

Although I didn’t know it at the time, this issue fell in the “autoimmune” category.  This is when your immune system “misfires” and sees healthy cells as foreign and it begins attacking itself.  Weird right?  I thought so too!  Some believe autoimmunity stems from diet.  Some feel it may be linked to environmental elements.  Some disorders may be genetic.

The list of autoimmune illnesses is quite lengthy.  This list includes, but is not limited to, Type 1 diabetes, rheumatoid arthritis, multiple sclerosis, psoriasis/psoriatic arthritis, lupus, fibromyalgia, celiac disease, etc.

handsRheumatoid Arthritis (RA) is when the immune system attacks the joints causing redness, swelling, warmth, and debilitating stiffness.  RA is often mistaken for an “old person’s disease” which is not the case.  (That would be osteoarthritis which is degenerative, not autoimmune.)  If you spoke with Emily, my 13 year old niece, she could speak first hand what RA feels like.  She is a precious soul!  She was diagnosed with Juvenile Rheumatoid Arthritis (JRA) at the age of 18 months!  Click this link to read the Q&A interview blog post that I shared on my personal website a few months ago.

For many issues that we all face, it is important to act quickly.  If you suffer from one of these autoimmune illnesses, all we really wish for is a quick diagnosis and a plan to manage the symptoms as soon as humanly possible.  RA is sometimes difficult to diagnose because the symptoms mimic so many other illnesses.  Oftentimes, these must be ruled out before receiving a definitive diagnosis.

If you’re an RA warrior patient, you must have RA warrior patience.

Just know your body…Listen to it…Be prepared to act…

P.S.   An update since my “Weight It Out” post,  I’m down 4 pounds.  I have 16 more to lose.  If you are joining me…keep it up!  If you messed up like I did today, start again immediately, not tomorrow.  The brownie that I ate was worth every calorie.  I jumped right back on the wagon, and no…I didn’t feel guilty!  Again…worth every calorie…and I still lost 4 pounds.  I will share more on this in the near future.  I appreciate our readers and always welcome your comments!

“Weight” It Out?

By Marianna Boyce

scaleWeight is an issue that most every woman deals with at some point in life.  As we age, it tends to find a way to hang on for dear life!  It seems that the determination to maintain a healthy weight and consistent exercise routine is now a thought bubble somewhere in the back of my mind.  That thought bubble is filled with excuses, but none better than “I just can’t because my entire body hurts!”  Although this is a very good excuse in my book, I still need to try and maintain a healthy lifestyle.

Before widespread joint pain aggressively reared its ugly head throughout my body, I was happy and healthy at 135 pounds.  These unusual symptoms suddenly took complete control of my life within a time span of merely fourteen days.  Diet and exercise was no longer a priority.

saladIn the kitchen, I was unable to cut, chop, peel, slice and dice, so preparing healthy meals at home was placed on the back burner, (no pun intended).  Fresh fruits and veggies were definitely off the menu.  I couldn’t do anything that required fine motor skills and dexterity due to the incredible pain being experienced in most every bending bone in my body.  In my unwanted new season of life, take-out was my “go to” because that was truly the best I could do!

Also prior to my unfortunate situation, I enjoyed a good workout several times a week but my exercise routine was also stopped dead in its tracks.  My knees, feet and ankles were very swollen and in excruciating pain so I could barely walk, much less exercise!

In an instant, my life was yanked from peaceful tranquility, and tossed into a horrible abyss that I refer to as “my alternate universe.”  I eventually saw an amazing rheumatologist here at LMC.  He helped me regain a somewhat normal life.   Praise the Lord for that!  He is my hero!

With the upcoming holidays, the comfort foods we have all grown accustomed are filled with more calories than our bodies know what to do with on any given day!  I also have two family reunions to attend before the end of the year!  Lord have mercy!  I cannot “weight” any longer.  I have to do something about it now.  I keep saying I’m going to but my “motivation meter”  is not set on high like it used to be.

stretchingI need to lose 20 pounds.  What about you?  Whether we need to lose 10 pounds or 100 pounds, let’s not “weight” it out!  Hopefully by the time we ring in the new year, we will already be on course. The hardest part is simply getting started!  I’ll keep you posted on progress or slip ups along the way.  Maybe sharing this with you will help me in my motivation department!

Visit my personal website, myalternateuniverseonline.wordpress.com to read about trying to reignite my exercise routine in 2016.  This story took place before I knew what was wrong with me.  It’s aptly titled, “It’s Time To Exercise the Demons!”  (Its about the fifth blog post down on the website.)  I would love for you to check it out.  It’s actually quite comical.  I will go ahead and share with you…it was a complete failure!  Pray for better results this time!  I am definitely going to need it! 

 Best of luck to you if you are planning to join me!

Free Therapy Anyone?

This month, we are introducing our new bloggers not only with their posts, but with a video!

Meet Marianna:

By Marianna Boyce

What is a blog?  Before March, 2018, I really didn’t know.  My very unique definition is as follows:

Blog (noun) – A public forum shared on the Internet where people can release pent-up frustration about living with daily chronic pain.  In sharing with others, feelings and emotions can be placed on the outside of oneself instead of bottling them up on the inside.

I had been suffering from intense pain related to an “undifferentiated inflammatory arthritis,” best classified as Rheumatoid Arthritis.  Writing would be the release I needed to bring me back from the alternate universe I had been living.  In a nutshell, blogging would be my free therapy. 

My name is Marianna Boyce and I’m sure you’ve already guessed that I deal with daily chronic pain.Marianna

I am 50 years old and recently celebrated my 31st wedding anniversary with my remarkable husband Gerry.

My daughter Tiffany is 38 and she is married to Bill.  They have three girls. Our two older grandchildren are adopted. Abby will soon be 13 and her sister Emma is 11.  Avery is 5 and she was a fantastic surprise!  That’s a whole story in itself!

If you do the math, you will figure out quickly that Tiffany is my bonus daughter.  Although I did not give birth to her, I consider her my daughter and will refer to her as such in future posts.  We have been through a lot together.  There was a reason for it all.

Our son Cody is 30.  He is a middle school teacher in Lexington School District One.

Parenting is one of the most difficult, yet most rewarding jobs a woman can have!  With Tiffany and Cody both “grown and gone,” our reward is now seeing them thrive and pursue their chosen careers. We’ve been blessed with two driven and goal-oriented children.

Another great reward is being “GiGi” to our three grandchildren.  I was effortlessly navigating my new season of life…until the unimaginable happened!

I vividly recall the moment my unusual journey began.  The onset of my mysterious symptoms would instantly change my life.  I would be tested in dramatic fashion.  Some days I would pass the test, but many days I would fail miserably.

Coping with prolonged, intense pain brings forth a wide range of emotions.  I experienced many victories and defeats along the way.  I will offer you a glance inside my little corner of the world, past and present.  I promise you this blog will not be all gloom and doom.  Although our lives are very different, I’m sure you deal with similar emotions on a daily basis.

I am thrilled to be a voice for Lexington Medical Center’s Every Woman Blog!  I sincerely look forward to sharing my unique story with you!  Your comments and feedback are always appreciated.

No one has a perfect life, but life itself…It is a gift.  God gives me breath, therefore I breathe, therefore I live!  I will live life to the fullest!

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