by Tina Michelle Cameron
September is Childhood Cancer Awareness Month. Gold is the color representing childhood cancer. How I wish that neither of these would exist. Cancer shouldn’t exist—for anyone – adults or children. This statement is coming from a woman who worked for 25 years as an adult oncology nurse. I would love to have to find a different field of nursing to work in – this would mean, cancer doesn’t exist. But, unfortunately, this is not the case.
Many people think childhood cancer is rare. But, each day in the United States, 43 families will hear the words parents should never hear: “your child has cancer.” It is the number one disease killer of children in the U.S. and the second leading cause of death (after accidents) in children ages 5-14. This means that every two minutes a child is diagnosed with cancer. This is an average of 300,000 kids worldwide being diagnosed each year—does this sound rare to you? This is unacceptable. Something must change. We need to demand more for these precious, innocent children.
I have listed the seven most common types of pediatric cancers. Leukemia is the number one cancer in children followed by Rhabdomyosarcoma, Wilms’ Tumor, Neuroblastoma, Lymphoma, Retinoblastoma, and Brain/Spinal Cord Tumors.
According to the Coalition Against Childhood Cancer (CAC2)* in 2014, of the $4.9 billion budget of the National Cancer Institute (NCI), only four percent went to research for childhood cancers. So, exactly how much is 4%– 4% of a dozen donuts is half a donut; 4% of an 8-hour night of sleep is 19.2 minutes and 4% of a $50,000 salary is $2,000.
Are you shocked? Has your mouth fallen open yet after reading that? Mine too. Were you also aware that since 1980, there have only been 3 new drugs approved for pediatric cancer treatment? In addition, only 4 new drugs approved for both pediatric and adult cancer treatment. These children are receiving adult-strength dosages to treat their cancers. The NCI needs to put childhood cancers as a higher priority as well as pharmaceutical companies. Many adult cancers receive private funding, this is not the case for pediatric cancers.
Parents are terrified of losing their child to this horrible disease, but must also still deal with life—work, other children at home, financial worries, as well as watching their child be sick with nausea/vomiting, pain, diarrhea, mouth sores, hair loss and other side effects from their treatments. Children that survive cancer often face lifelong problems from their treatments. These problems can range from breathing problems and difficulty walking to sight, hearing and heart issues. Many of these children can become traumatized from everything they go through. So, even though the treatments are over, their journey is still not over. They will have the fear of it returning.
Parents should not worry about losing their job, their home, their car or getting behind on bills because of the financial burden that cancer treatments cost. Many parents must create a GoFundMe page, so they can stay with their child in the hospital or be with them for their lengthy treatments. This should not be. We as a nation need to stand up for these children and do better. We need to ensure more research funding goes to these children. They deserve more than 4%.
*Credit for cancer statistics given to Coalition Against Childhood Cancer and the National Cancer Institute.